This is another rare type of thyroid cancer and tends to present at an older age. The majority of patients are older than 60 years. It tends to grow more quickly than the other types and can be difficult to treat.
If you have anaplastic cancer and are interested in participating in our data collection project, please click here.
The interNational Anaplastic Thyroid Cancer Tissue Bank and Database project (iNATT) was launched in 2013. The project offers patients with this diagnosis a rare opportunity to participate in research. By collecting tissue and blood samples along with clinical information from across the UK and from international centres we will be able to gather a significant amount of data which will help us make progress with research in to this difficult to treat disease. We hope to learn more about why and how this type of cancer develops so that we can then develop new ways to treat it. This is going to be a long term project which will need to run over a number of years.
Patients who are interested in taking part will be asked to provide their consent for their already collected tissue samples (e.g. thyroid gland biopsy) to be donated to iNATT. They will also have the option to donate a small blood sample and to have their clinical data collected. This will be stored securely and confidentially and will only be accessible by your own doctor and the study's chief investigator.
This research project will be run by Dr Laura Moss, Consultant Oncologist at Velindre Cancer Centre, Cardiff , UK in conjunction with the staff of the Wales Cancer Bank, a multidisciplinary steering committee and with the support of the National Cancer Research Institute Thyroid Cancer Subgroup.
The project also has the support of the UK Endocrine Pathology Society, the International Rare Cancer Initiative, members of Thyroid Cancer Forum-UK and the European Thyroid Association along with thyroid cancer patient charity support from Thyroid Cancer Support Group-Wales and the Butterfly Thyroid Cancer Trust.
Funding has been provided by Thyroid Cancer Support Group Wales (registered charity number 1113774).
There is a website www.inatt.org where you can find further details on iNATT as well as other information related to anaplastic thyroid cancer research.
If you would like to find out more about iNATT please contact the Chief Investigator via Laura.Moss@wales.nhs.uk or +44 (0) 29 20316205